Functional profile of patients receiving palliative care at Fundación San Rafael
DOI:
https://doi.org/10.5281/zenodo.22756022Keywords:
physical therapy specialty, palliative care, terminal care, functional statusAbstract
Introduction: Palliative care aims to improve quality of life for patients with serious or terminal illness through relief of pain and other symptoms, and comprehensive support for patients and families. The aim was to analyze the functional profile of patients receiving palliative care at Fundación San Rafael during 2023.
Materials and methods: Descriptive, non-experimental, prospective, cross-sectional quantitative study. Eleven patients were assessed with the Katz Index, the Karnofsky Performance Status Scale, and the Edmonton Symptom Assessment System (ESAS).
Results: Female 6, male 5; mean age 65.3 years (SD 22.3); non-oncologic diagnosis 8, oncologic 3. Katz: predominant dependence in toileting, mobility and continence (10/11 each) and dressing (9/11); feeding 6/11 dependent. Karnofsky 40 in 81.8%. ESAS: most prevalent symptoms were pain and fatigue, followed by anxiety and general discomfort.
Conclusions: Low functionality with dependence in most basic activities and a symptom profile dominated by pain and fatigue; findings support physiotherapeutic intervention in advanced stages.
References
Radbruch L, De Lima L, Knaul F, Wenk R, Ali Z, Bhatnaghar S, et al. Redefining Palliative Care-A New Consensus-Based Definition. J Pain Symptom Manage. 2020;60(4):754-64. https://doi.org/10.1016/j.jpainsymman.2020.04.027
Lunney JR, Lynn J, Foley DJ, Lipson S, Guralnik JM. Patterns of functional decline at the end of life. JAMA. 2003;289(18):2387-92. https://doi.org/10.1001/jama.289.18.2387
Lino VT, Pereira SR, Camacho LA, Ribeiro Filho ST, Buksman S. Adaptación transcultural del Índice de Independencia en las Actividades de la Vida Diaria (Índice de Katz). Cad Saude Publica. 2008;24(1):103-12. https://doi.org/10.1590/s0102-311x2008000100010
Arik G, Varan HD, Yavuz BB, Karabulut E, Kara O, Kilic MK, et al. Validation of Katz index of independence in activities of daily living in Turkish older adults. Arch Gerontol Geriatr. 2015;61(3):344-50. https://doi.org/10.1016/j.archger.2015.08.019
de Kock I, Mirhosseini M, Lau F, Thai V, Downing M, Quan H, et al. Conversion of Karnofsky Performance Status (KPS) and Eastern Cooperative Oncology Group Performance Status (ECOG) to Palliative Performance Scale (PPS), and the interchangeability of PPS and KPS in prognostic tools. J Palliat Care. 2013;29(3):163-9. https://doi.org/10.1177/082585971302900305
Blum M, Zeng L, Gelfman LP. Prognostic performance of the Karnofsky Performance Status for predicting in-hospital mortality among unselected patients who receive palliative care consultations. Palliat Med. 2024;38(2):279-80. https://doi.org/10.1177/02692163231220824
Bruera E, Kuehn N, Miller MJ, Selmser P, Macmillan K. The Edmonton Symptom Assessment System (ESAS): a simple method for the assessment of palliative care patients. J Palliat Care. 1991;7(2):6-9. https://doi.org/10.1177/082585979100700202
Watanabe SM, Nekolaichuk CL, Beaumont C. The Edmonton Symptom Assessment System, a proposed tool for distress screening in cancer patients: development and refinement. Psychooncology. 2012;21(9):977-85. https://doi.org/10.1002/pon.1996
Carvajal A, Hribernik N, Duarte E, Sanz-Rubiales A, Centeno C. The Spanish version of the Edmonton Symptom Assessment System-revised (ESAS-r): first psychometric analysis involving patients with advanced cancer. J Pain Symptom Manage. 2013;45(1):129-36. https://doi.org/10.1016/j.jpainsymman.2012.01.014
Hui D, Bruera E. The Edmonton Symptom Assessment System 25 Years Later: Past, Present, and Future Developments. J Pain Symptom Manage. 2017;53(3):630-43. https://doi.org/10.1016/j.jpainsymman.2016.10.370
Hung YS, Chang H, Wu WS, Chen JS, Chou WC. A comparison of cancer and noncancer patients who receive palliative care consultation services. Am J Hosp Palliat Care. 2013;30(6):558-65. https://doi.org/10.1177/1049909112461842
Fordjour GA, Chow AYM, Hui VKY, Chan CLW. Comparative analysis of symptom burdens and influential factors among diverse terminally-ill patients. Ann Palliat Med. 2024;13(3):513-30. https://doi.org/10.21037/apm-23-565
Mounsey L, Ferres M, Eastman P. Palliative care for the patient without cancer. Aust J Gen Pract. 2018;47(11):765-9. https://doi.org/10.31128/AJGP-07-18-4625
Tanriverdi A, Ozcan Kahraman B, Ergin G, Karadibak D, Savci S. Effect of exercise interventions in adults with cancer receiving palliative care: a systematic review and meta-analysis. Support Care Cancer. 2023;31(4):205. https://doi.org/10.1007/s00520-023-07655-0
Toohey K, Chapman M, Rushby AM, Urban K, Ingham G, Singh B. The effects of physical exercise in the palliative care phase for people with advanced cancer: a systematic review with meta-analysis. J Cancer Surviv. 2023;17(2):399-415. https://doi.org/10.1007/s11764-021-01153-0
De Korte-Verhoef MC, Pasman HRW, Schweitzer BPM, Francke AL, Onwuteaka-Philipsen BD, Deliens L. Reasons for hospitalisation at the end of life: differences between cancer and non-cancer patients. Support Care Cancer. 2014;22(3):645-52. https://doi.org/10.1007/s00520-013-2019-9
Downloads
Published
Issue
Section
License
Copyright (c) 2024 Sanie Magali Miranda López, Felipe Miguel Oviedo Frutos (Autor/a)
This work is licensed under a Creative Commons Attribution 4.0 International License.
Articles are distributed under the Creative Commons Attribution 4.0 International — CC BY 4.0 licence. Authors retain copyright and grant the journal the right of first publication. Any reuse must acknowledge authorship, cite the original source and indicate whether changes were made.
